A History of AIDS Social Work in Hospitals

Published in 2003, find my contribution and early thoughts about HIV Special Needs Plans.  By July 2003, all HIV SNPs had become operational.  By September 2006, they are:  MetroPlus, NewYork-Presbyterian System SelectHealth, and Amida Care.

http://www.routledge.com/books/details/9780789015877/

Chapter 20: Social Work, New York State AIDS Centers and Special Needs Plans

Eli Camhi

©2003 The Haworth Press, Inc. Binghamton, NY, Camhi, E.,  Chapter 20: Social Work, New York State AIDS Centers, and Special Needs Plans in A history of AIDS social work in hospitals: a daring response to an epidemic, pages 199-201, Willinger, B., Rice, A. Editors.

Social workers have been on the front line serving the HIV-infected and -affected community since the very beginning of the epidemic. In New York City, from the mid-1980s through the mid-1990s, most AIDS cases were first encountered in hospitals. Hospital social workers, traditionally employed as discharge planners, were among the first to serve these individuals, partnering with nurses, physicians, and other health care providers struggling to  overcome the often lethal consequences of untreated opportunistic infections while attempting to restore the patient’s social, economic, and psychological support system.

Hospital administrators, medical directors, and social work departments soon learned that to address the complex and multiple needs of newly diagnosed AIDS patients, dedicated multidisciplinary teams were necessary. The AIDS Institute of the New York State Department of Health developed specialized contracts for hospitals willing to create and support such teams. These hospitals were called designated AIDS centers (DACs) and were required to  establish a continuum of care that included dedicated inpatient AIDS units linked with outpatient HIV primary care clinics often within departments of infectious diseases. Experienced multidisciplinary teams were created to include physicians, nurses, social workers, counselors, psychiatrists, dieticians, and assorted hospital clerical and administrative staff.

To recruit hospitals to become DACs, the state compensated them with an enhanced outpatient HIV primary care Medicaid rate to offset care team costs. In addition, the state provided the DACs with the ability to select either per diem or DRG (diagnosis-related group) rate of payment. Most DACs chose the per diem rate over the DRG rate because of the unadjusted DRG rate; for example, the standard of care for treatment of Pneumocystis carinii pneumonia (PCP) was twenty-one days of IV therapy in contrast to the DRG rate of only sixteen days. The state’s fiscal strategies catalyzed rapid change in the care delivery system. Prominent hospitals added specialized staff members quickly, including AIDS center social workers in inpatient and outpatient settings. A fundamental component of the model was aggressive and specialized case management by specialized social workers at various points of care.

In the mid-1990s, breakthroughs in AIDS drug development resulted in the availability of antiretroviral therapies that dramatically reduced the virus’s ability to compromise patient immune systems and permit opportunistic infections. This, in turn, resulted in dramatic and significant declines in deaths, hospitalizations, and lengths of stay. In AIDS centers and other hospitals throughout New York State, the total average daily inpatient AIDS census dropped from 2,646 in 1992 to 1,276 in 1998, approximately 52 percent (Chiasson et al., 1998).

These trends required another significant shift in the service delivery model. Prior to 1995, staff resources for AIDS care were concentrated heavily on hospital inpatient units. Some AIDS centers provided one inpatient social worker for every twelve to eighteen hospitalized AIDS patients. In the early days of the epidemic some New York City hospitals averaged a daily inpatient AIDS census of well over sixty patients (Chiasson et al., 1997). With the success of new treatments, outpatient care was now center stage. Clinics began to experience rapid growth as patients sought access to these new therapies. Some hospitals wisely reallocated the now surplus inpatient team of social workers and others to the outpatient setting to meet the increasing demand for service, but many others did not. Pressure on hospitals to  decrease costs resulted in a significant reduction of social work staff and, in some cases, the downsizing of hospital social work departments.

When length of stay (LOS) declined, per diem rates in most cases paid less per patient than DRGs; it was then that most DACs abandoned the per diem rate. When LOS declined, clinic cost increased because more patients entered and remained in care. Unfortunately, outpatient AIDS care is not entirely self-sufficient. For many years, AIDS center clinics were subsidized with inpatient dollars as well as by various federal grants. This trend of shifting from a predominately inpatient model to one of predominately outpatient care did not go unnoticed. The AIDS Institute, again, began to plan for a change in reimbursement for the HIV care delivery system.

As early as 1995, the state began to develop a unique and innovative model of reimbursement that would essentially permit the rapid and specific allocation of funds to where the care was needed. HIV special needs plans (SNPs) were proposed to operate as Medicaid-managed care plans exclusively for HIV-infected adults and their dependent children. Through a remarkable collaboration, the state, persons with AIDS, community-based organizations, and health care providers together crafted a model that would preserve the  best of the payment structure of the Medicaid fee-for-service plan while supporting opportunities for new and more effective reimbursement strategies. In addition, SNPs would provide a viable alternative to mainstream Medicaid-managed plans as the state moved toward mandatory enrollment of the uninfected Medicaid community.

HIV special needs plans operate using a monthly capitated rate based upon either an HIV or AIDS diagnosis. All standard Medicaid benefits are included and medication is carved out. Patients continue to fill their prescriptions at local pharmacies. Universal case management is required, provided by the SNP or through linkage agreements with grant-supported   community-based organizations and designated AIDS center hospitals. Social workers in the community and in the AIDS centers will continue to have the opportunity to fill significant roles in the SNP case management model.

As of January 2003, HIV special needs plans have yet to be licensed. However, in New York City, seven entities are aggressively preparing for the state’s licensure. It is expected that at least three SNPs will be operational by the first quarter of 2003 and the remainder by July 2003. If successful, SNPs will become self-sustaining vehicles that finance the continually evolving HIV care delivery system, insuring and protecting our most precious resource: our community.

REFERENCES

Chiasson, M.A., Berenson, L., Li, W., Schwartz, S., Singh, T., Forlenza, S., and Mojica, B. (1997). Accelerating decline in New York City AIDS  Mortality. Presented at the Fourth conference on Retroviruses and Opportunistic Infections, Washington, DC, January.

Chiasson, M.A., Berenson, L., Li, W., Schwartz, S., Singh, T., Forlenza, S.,  and Mojica, B. (1998). Accelerating decline in New York City AIDS  Mortality. Presented at the Fifth conference on Retroviruses and Opportunistic Infections, Chicago, IL, February.

Unpublished Letter to the New York Times

On August 22, 2006 Dr. Abigail Zuger published an article in the New York TImes “Fight Against AIDS: Small Triumphs, Sunny Optimism and Grim Reality“. In response I sent a letter to the Editor which was never published. This is an expanded version of my letter (with a heartfelt thank you to those who helped refine the text).

Letter To Editor:
 
Dr. Zuger is right to expect more for her patients. For Medicaid recipients in New York the solution is much closer than Bill Gates’s money – HIV Special Needs Plans (SNPs).
 
More than 10 years ago the New York State Department of Health’s AIDS Institute anticipated the need for a more comprehensive care system for those living with HIV and on Medicaid.  HIV SNPs were developed with significant input from the HIV consumer and provider communities.  The SNP program was built upon the vast experience of the AIDS Institute in delivering HIV/AIDS care in the Medicaid fee-for-service sector through the development of Medicaid specialty programs such as the Designated AIDS Center hospital program and other care models.    Culminating in 2003, New York State’s efforts resulted in licensing HIV Special Needs Plans (SNPs).  
 
SNPs have dedicated HIV/AIDS-experienced provider networks and have been able to create access to specialty care related to the needs that Dr. Zuger described.   SNPs have a flexible funding apparatus through significantly higher capitation payments from the State than is available in regular managed care.  This enhanced funding and greater specialist capacity combined with the SNPs’ specialized member services and medical management departments ensure timely and highly coordinated care.  
 
Enrollment in HIV SNPs is voluntary and open to HIV infected individuals who are residents of New York City and on Medicaid.  A SNP enrollee’s dependent children of up to the age 19 can also be enrolled regardless of HIV status.
 
We urge Dr. Zuger and other health providers in New York City to talk with patients with HIV to see if enrolling in an HIV SNP would be the right choice for them.
 
For more information on HIV Special Needs Plans visit the New York State Department of Health website at www.health.state.ny.us  
 
 
Eli Camhi, LMSW
Executive Director
NewYork-Presbyterian System SelectHealth
212-404-1278

A History of AIDS Social Work in Hospitals

Published in 2003, find my contribution and early thoughts about HIV Special Needs Plans.  By July 2003, all HIV SNPs had become operational.  By September 2006, they are:  MetroPlus, NewYork-Presbyterian System SelectHealth, and Amida Care.

Chapter 20: Social Work, New York State AIDS Centers and Special Needs Plans

Eli Camhi

©2003 The Haworth Press, Inc. Binghamton, NY, Camhi, E.,  Chapter 20: Social Work, New York State AIDS Centers, and Special Needs Plans in A history of AIDS social work in hospitals: a daring response to an epidemic, pages 199-201, Willinger, B., Rice, A. Editors.

Social workers have been on the front line serving the HIV-infected and -affected community since the very beginning of the epidemic. In New York City, from the mid-1980s through the mid-1990s, most AIDS cases were first encountered in hospitals. Hospital social workers, traditionally employed as discharge planners, were among the first to serve these individuals, partnering with nurses, physicians, and other health care providers struggling to  overcome the often lethal consequences of untreated opportunistic infections while attempting to restore the patient’s social, economic, and psychological support system.

Hospital administrators, medical directors, and social work departments soon learned that to address the complex and multiple needs of newly diagnosed AIDS patients, dedicated multidisciplinary teams were necessary. The AIDS Institute of the New York State Department of Health developed specialized contracts for hospitals willing to create and support such teams. These hospitals were called designated AIDS centers (DACs) and were required to  establish a continuum of care that included dedicated inpatient AIDS units linked with outpatient HIV primary care clinics often within departments of infectious diseases. Experienced multidisciplinary teams were created to include physicians, nurses, social workers, counselors, psychiatrists, dieticians, and assorted hospital clerical and administrative staff.

To recruit hospitals to become DACs, the state compensated them with an enhanced outpatient HIV primary care Medicaid rate to offset care team costs. In addition, the state provided the DACs with the ability to select either per diem or DRG (diagnosis-related group) rate of payment. Most DACs chose the per diem rate over the DRG rate because of the unadjusted DRG rate; for example, the standard of care for treatment of Pneumocystis carinii pneumonia (PCP) was twenty-one days of IV therapy in contrast to the DRG rate of only sixteen days. The state’s fiscal strategies catalyzed rapid change in the care delivery system. Prominent hospitals added specialized staff members quickly, including AIDS center social workers in inpatient and outpatient settings. A fundamental component of the model was aggressive and specialized case management by specialized social workers at various points of care.

In the mid-1990s, breakthroughs in AIDS drug development resulted in the availability of antiretroviral therapies that dramatically reduced the virus’s ability to compromise patient immune systems and permit opportunistic infections. This, in turn, resulted in dramatic and significant declines in deaths, hospitalizations, and lengths of stay. In AIDS centers and other hospitals throughout New York State, the total average daily inpatient AIDS census dropped from 2,646 in 1992 to 1,276 in 1998, approximately 52 percent (Chiasson et al., 1998).

These trends required another significant shift in the service delivery model. Prior to 1995, staff resources for AIDS care were concentrated heavily on hospital inpatient units. Some AIDS centers provided one inpatient social worker for every twelve to eighteen hospitalized AIDS patients. In the early days of the epidemic some New York City hospitals averaged a daily inpatient AIDS census of well over sixty patients (Chiasson et al., 1997). With the success of new treatments, outpatient care was now center stage. Clinics began to experience rapid growth as patients sought access to these new therapies. Some hospitals wisely reallocated the now surplus inpatient team of social workers and others to the outpatient setting to meet the increasing demand for service, but many others did not. Pressure on hospitals to  decrease costs resulted in a significant reduction of social work staff and, in some cases, the downsizing of hospital social work departments.

When length of stay (LOS) declined, per diem rates in most cases paid less per patient than DRGs; it was then that most DACs abandoned the per diem rate. When LOS declined, clinic cost increased because more patients entered and remained in care. Unfortunately, outpatient AIDS care is not entirely self-sufficient. For many years, AIDS center clinics were subsidized with inpatient dollars as well as by various federal grants. This trend of shifting from a predominately inpatient model to one of predominately outpatient care did not go unnoticed. The AIDS Institute, again, began to plan for a change in reimbursement for the HIV care delivery system.

As early as 1995, the state began to develop a unique and innovative model of reimbursement that would essentially permit the rapid and specific allocation of funds to where the care was needed. HIV special needs plans (SNPs) were proposed to operate as Medicaid-managed care plans exclusively for HIV-infected adults and their dependent children. Through a remarkable collaboration, the state, persons with AIDS, community-based organizations, and health care providers together crafted a model that would preserve the  best of the payment structure of the Medicaid fee-for-service plan while supporting opportunities for new and more effective reimbursement strategies. In addition, SNPs would provide a viable alternative to mainstream Medicaid-managed plans as the state moved toward mandatory enrollment of the uninfected Medicaid community.

HIV special needs plans operate using a monthly capitated rate based upon either an HIV or AIDS diagnosis. All standard Medicaid benefits are included and medication is carved out. Patients continue to fill their prescriptions at local pharmacies. Universal case management is required, provided by the SNP or through linkage agreements with grant-supported   community-based organizations and designated AIDS center hospitals. Social workers in the community and in the AIDS centers will continue to have the opportunity to fill significant roles in the SNP case management model.

As of January 2003, HIV special needs plans have yet to be licensed. However, in New York City, seven entities are aggressively preparing for the state’s licensure. It is expected that at least three SNPs will be operational by the first quarter of 2003 and the remainder by July 2003. If successful, SNPs will become self-sustaining vehicles that finance the continually evolving HIV care delivery system, insuring and protecting our most precious resource: our community.

REFERENCES

Chiasson, M.A., Berenson, L., Li, W., Schwartz, S., Singh, T., Forlenza, S., and Mojica, B. (1997). Accelerating decline in New York City AIDS  Mortality. Presented at the Fourth conference on Retroviruses and Opportunistic Infections, Washington, DC, January.

Chiasson, M.A., Berenson, L., Li, W., Schwartz, S., Singh, T., Forlenza, S.,  and Mojica, B. (1998). Accelerating decline in New York City AIDS  Mortality. Presented at the Fifth conference on Retroviruses and Opportunistic Infections, Chicago, IL, February.

2008 Ryan White HIV/AIDS Program Grantee Meeting

Session Descriptions are now available:
For those attending I am participating in the following presentations:

AF-301
Title Show Me the Program Income?
Workshop Block Workshop A
Track Administration/Fiscal
Date Monday, August 25
Time 11:00am-12:30pm
Location Wilson B
Level Basic

This session is for those grantees with little or no experience in billing third-party payors and for those that are experienced and looking for enhancements. The session will focus on starting or contracting for a
third-party billing system, the importance of the fee schedule and eligibility verification. The discussion will also include how program income is restricted and how it may be expended. Cost-based reimbursement will be discussed including negotiating with third-party insurers and federally qualified health centers (FQHC).

Moderator Sylvia Trent-Adams
Presenters Thomas Hickey
Julia (Lolita) Cervera
Eli Camhi

AF-341
Title Developing and Implementing a User-Friendly Priority Setting Tool
Workshop Block Workshop F
Track Administration/Fiscal
Date Tuesday, August 26
Time 3:30pm-5:00pm
Location Delaware B
Level Intermediate

In 2005, the NYC EMA Planning Council created a task force to develop a priority setting tool. After a thorough review of the published literature, the task force chose to use the grid analysis to assess the service portfolio. This workshop will discuss how the task force was able to provide specific recommendations on funding, service elements, and guidance within service categories based on the results of this analysis.

Moderator Songhai Barclift

Presenters Eli Camhi
Anthony Santella
JoAnn Hilger

See you in Washington!

Eli Camhi
ecamhi@generes.com

Comparison of Fee-for-Service, Mainstream Managed Care and HIV Special Needs Plans (SNPs) Shows Better Quality in Managed Care

There are currently three delivery system options that New York City Medicaid beneficiaries with HIV may choose: the fee-for-service system, mainstream managed care plans or HIV SNPs. The Department of Health designed a study to determine how the three delivery systems compared on a variety of quality of care and service utilization measures. Preliminary results follow. more…

“Choices in Care” Ranks HIV Care in Special Needs Managed Care Plans as Superior to Traditional Medicaid

The Choices in Care Study was conducted by the New York State Department of Health’s AIDS Institute with research staff from the Memorial Sloan-Kettering Cancer Center. The study began in 2003 with the inception of HIV Special Needs Plans (SNPs), a managed care model designed to address the care needs of people living with HIV/AIDS (PLWHAs). The purpose of the study was to evaluate the effectiveness of the HIV SNP in comparison with services received under the Medicaid fee-for-service (FFS) system by examining respondents’ self-reported perceptions of care. As of July 2008, 3,255 individuals (both HIV-infected persons and their uninfected children) were enrolled in the three operating HIV SNPs.

Methodology

The study involved two groups of HIV-positive Medicaid recipients. The first group was comprised of persons newly-enrolled in one of the three HIV SNPs and who were recruited within 45-90 days of their HIV SNP enrollment. The second group was comprised of persons receiving care under the FFS model and who responded to flyers recruiting for the study that were posted at Designated AIDS Centers, community-based organizations, and AIDS adult day health care programs. Study participants were followed for a year through a series of five interviews at three-month intervals, including a baseline interview on recruitment into the study. The interviews focused on respondents’ self-reported health history and status, utilization of services, adherence to treatment, risk behavior, quality of life, and their perceptions of the care received – whether and to what extent their concerns were resolved, problems with the care they received, and satisfaction with the care or services they received – either as an HIV SNP enrollee or while receiving care through the FFS system. The experiences in care of both sets of study respondents over the 12-month period were examined over several domains. Of the 628 individuals completing a baseline interview, 470 individuals or 74.8% completed all five interviews.

Study Findings

Key findings and initial conclusions from the analysis of the baseline interviews and the first and second three-month interviews are summarized below.

Continuity and Coordination of Care

HIV SNP enrollees reported fewer interruptions in their relationships with providers than the FFS recipients in the study.
HIV SNP enrollees reported being more likely to receive referrals from their primary care physician or case managers than FFS respondents.
HIV SNP enrollees mentioned more new medical specialists available to them, while FFS recipients in the study mentioned more new primary care providers (PCPs). HIV SNP enrollees were more likely than FFS recipients to stay with their PCPs and to expand their network of specialists.

Barriers to Care

HIV SNP enrollees who were actively seeking help reported fewer barriers than their FFS counterparts.

Communication with Providers

HIV SNP enrollees reported fewer problems in communicating with their providers than FFS respondents. HIV SNP enrollees were also significantly less likely to report that providers failed to address their problems or treated them disrespectfully.
Among those patients who reported recent medical problems, FFS recipients in the study were more likely to say that medical instructions they had received were unclear than those enrolled in an HIV SNP.
Satisfaction

Although satisfaction with care received was found to be very high for both HIV SNP and FFS groups, the study found that HIV SNP enrollees concerned with obtaining specialty or inpatient care were significantly more satisfied with their providers than the FFS respondents.

Problem Resolution

HIV SNP study participants who were actively engaged in care had more favorable outcomes regarding the resolution of problems than FFS respondents.

Medical Symptoms

Among study respondents who reported medical symptoms at baseline, HIV SNP enrollees reported fewer symptoms at the time of the six-month interview than those in FFS. This difference is more pronounced among those with emergent medical problems.

Sexual Risk Behavior

HIV SNP enrollees who were receiving services reported a decrease in unprotected sex with HIV-negative persons or those with unknown HIV status; FFS respondents reported an increase in unprotected sex with HIV-negative persons or those with unknown HIV status at the time of the six-month follow-up.

Tobacco Use

Among respondents who were smoking at baseline, HIV SNP enrollees were less likely to still be smoking by the time of six-month interview than their FFS counterparts. This effect is even more prominent when focusing on those who had ever smoked.

Governor Pataki Announces $12 Million For HIV/AIDS Health Care

Governor George E. Pataki today announced more than $12 million in funding for eight HIV/AIDS special needs health care plans the first of their kind in the nation. The plans will provide comprehensive health care services to Medicaid eligible individuals who are living with HIV/AIDS …more…